So, I've been getting a ton of questions about Fisher's disease...what it is, what it does, how do you pronounce it...? I found this video on YouTube, sponsored by the American Partnership For Eosinophilic Disorders (APFED). The video is about 5 minutes long, and details the lives of children with eosinophilic disorders. As a mom of one of these kids, this video made me cry like a baby. The kids talk about their life without food, and how it impacts them on a day-to-day basis. Parents talk about the struggles of raising a child with an eosinophilic disease. Take a look...
I have had a lot of people also ask how they can help. We belong to a local Eos support group that is putting on a Gala and Golf Tournament at Brookhaven Country Club in May. You can check out the website at www.angelsforeos.org The silent auction items are AMAZING! Every bit of the proceeds go to Cincinnati Children's Hospital, Center for Eosinophilic Disorders (where Fisher receives of his medical treatment).
I hope that this can answer some of your questions, and give you a little insight as to what our life is like with this yucky disease.