Cincinnati Part I

Well, a month ago we were in Cincinnati for Fisher's EE treatment, and I am just now getting these pictures up. Thanks for your patience, and without further adieu...



This is how the cool kids get around at the hospital.


Waiting to be wheeled back for his biopsy



Recovery room...lots of yummy popsicles!



Skin prick testing...40 mins of blood, sweat, and lots of tears! Poor guy reacted to over 50 things. These are the itchy hives that pop up when there is a reaction.




These are food patches on Fisher's back. They have to stay on for 72 hours to see if he has a delayed reaction to a particular food. No reactions!



The Ronald McDonald House, where we got to stay.



There was a train table right outside our room that the boys played with every day.



















We were so blessed to have some friends that live near Cincinnati - Katherine, David, and their two boys Carson and Tucker. They were a lifesaver during our time in Cinci, and the boys had such a great time playing together.

Pictures from Cincinnati - Part II

I will never forget what a good friend told me as we prepared to

back up our entire family for this trip..."This will be such a great

opportunity for London, to see that this is what a family does to

support each other. You do it together." Thanks for the reminder,

Elaine. I know that these boys already had such a strong bond

before we went to Cinci...now, difficult as it is to imagine, their

bond is stronger. They are the very best of friends.

The "Wall of Love," created by all of Fisher and London's
friends from Rainbow School. This was so encouraging to
us during such a tough week.

This was the day after we got home...tired from such a busy

week. He hasn't fallen asleep in the middle of his toys since

he was a baby.

Watch This Video!

So, I've been getting a ton of questions about Fisher's disease...what it is, what it does, how do you pronounce it...? I found this video on YouTube, sponsored by the American Partnership For Eosinophilic Disorders (APFED). The video is about 5 minutes long, and details the lives of children with eosinophilic disorders. As a mom of one of these kids, this video made me cry like a baby. The kids talk about their life without food, and how it impacts them on a day-to-day basis. Parents talk about the struggles of raising a child with an eosinophilic disease. Take a look...

http://www.youtube.com/watch?v=16ak9Pndzis&feature=related

I have had a lot of people also ask how they can help. We belong to a local Eos support group that is putting on a Gala and Golf Tournament at Brookhaven Country Club in May. You can check out the website at www.angelsforeos.org The silent auction items are AMAZING! Every bit of the proceeds go to Cincinnati Children's Hospital, Center for Eosinophilic Disorders (where Fisher receives of his medical treatment).

I hope that this can answer some of your questions, and give you a little insight as to what our life is like with this yucky disease.